Chemo Day 1 – Babylon…

Completion of Day 1 Chemo: Friday, Aug. 30, 2013

Made it through the three cycles. The first comes around 11-12, and runs several hours, I tried to read and then sleep through it. It really took all my energy, I didn’t really feel bad, just really weak. Kristy and I tried to take a walk in the afternoon, my legs were so weak, I just made it to a park bench and enjoyed the cool weather, and being out of the room. I always worry about falling, and tripping, so this was a big concern of mine at this point.

Made it back to the room for a break and a visit with Dr. F, he showed me the schedule for the next four days, and I would have a another small dose still today, and then another infusion late this evening, 11:00. The small dose was fine, but then I tried to stay up for the late dose and fell asleep. She woke me and hooked me up and left, shortly thereafter an alarm went off on the pump and it showed air in the line. I’m thinking this can’t be good, so I called the nurse. She promptly came and tried to bleed the line of the air, but after 30 min, it just wasn’t working. She got a new bottle and line and started all over again. So, this was a really late night and I slept again, then woke up to see it almost done and rang for her to disconnect it. Glad that was over. I then see a message from Kristy that the dose was MESNA, and I should drink a lot of water to flush it out, it can make you nauseated, which I was beginning to feel a bit already. So, I downed a liter of water, and proceeded to need to pee every hour on the hour. Guess it worked though, I did not have any nausea after that. Handy having an English speaking nurse as a friend just two doors down. 🙂

I woke a bit tired from the late night and frequent bathroom breaks, but starving. The dinner last night was not a favorite, maybe not of anyone. I went to jump in the shower and noticed my “Octopus”, let’s just call him “Marvin”, well Marvin was bleeding around the bandages, so I went and showed the nurse show she could change the bandages after my shower. No bleed out, just needed some cleaning up, good to go again.

Kristy wanted to get out for a walk early, before we are zapped after the chemo, so we took a stroll. The leaves are falling and the air is crisp, it felt wonderful to sit out for a while before hitting day two.

Yes, I'm the good one with the lunch lady net on.

Yes, I’m the good one with the lunch lady net on.

Kristy

Kristy

David Grey – Babylon Enjoy, while meeting more of my friends that helped me get here.

Girls Night

Girls Night

IMG_0015

IMG_0026

IMG_0037

IMG_0076

1980-01-01 00.00.17-1</a1980-01-01 00.00.37

1980-01-01 00.00.14

1980-01-01 00.00.23-1

Into the Mystic…

Day 1 – Chemo:

Well today’s the day they start to kill off the bad stuff, and some of the good, that’s how chemo works.  You have to kill some of the good with the bad, and hope that they outcome is,

Chemo Day 1

Chemo Day 1

the good is strong enough to fight back and blossom.   I was a bit lightheaded this morning, probably from not eating enough yesterday, due to the pain.  But, I made it through the night and woke up just in time to see my Ole Miss Rebels defeat Vanderbilt 39-35, in a last minute win.  So, it made it all worth while. 🙂

I will have two rounds today, plus a mound of pills to choke down, before the day ends.

Short post today, a bit tired, but wanted to keep you in the loop.  I’m still here and kicking.

Van Morrison – Into the Mystic
http://www.youtube.com/watch?v=O0DJ8hWgNes<

These are the reason I'm here fighting, and many others of you I don't have photos of, but your in my heart and head. And my battery is dying, so you will get your 3 sec. of fame tomorrow. Thanks for your love and support!.

Thomas and Vicki

Christmas Trip 2009 024

IMG_0344

family

family


Team Vicki

Team Vicki

IMG_0357

Can’t keep a Rebel Down!!

A little late posting today, sorry.

My day started off nice enough, woke up refreshed and ready to go. Amazing how fast you can get ready in the morning when you don’t have hair to deal with, so out the door in a flash for a nice walk. I went to the chapel this morning for some quiet time. 2013-08-19 21.47.51 Fall is in the air here, so I was loving the walk with the leaves drifting down around me. So, I get back to my room and take a rest, then it’s time for the “octopus” installation. They put in my new line in my jugular, (other side this time) for the chemo that will begin tomorrow, and that bugger hurt like the dickens.

New "octopus" lines for chemo

New “octopus” lines for chemo

Had me down for a while, it felt like my head would explode. I pressed the nurses button, which, by the way, when it chimes, sounds just like the ice cream truck is coming down the street. This may explain my unusual desire for ice cream since I’ve been here. Sorry I digress. She comes to see what is wrong and comes back and reapplies the bandages on my neck, I guess thinking they are too tight and cutting the blood off to my brain, not sure about that idea. Anyway, it didn’t help at all, and not too long later she came back and loaded me up with some good pain meds, and I’m feeling much better. What away to ruin such a beautiful day.

Anyway, it takes more than that to take me down.

Hotty Toddy! Go Rebs!

Hotty Toddy! Go Rebs!

Back at home it’s Football Time in the South and my beloved Ole Miss Rebels will start their season tonight vs. Vanderbilt University. Hopefully I can watch it on replay tomorrow, but if not, please don’t tell me the score.

Feeling Free…

Thought I’d give you the song first this morning, to play with the photos. Enjoy!

Here we go!  The shave.

Here we go! The shave.

Shave 2

Shave 2

Shave 3

Shave 3

OK, it doesn't look like Demi, but I didn't have a stylist either.

OK, it doesn’t look like Demi, but I didn’t have a stylist either.

Almost done!

Almost done!

All done!

All done!

Final

Final

Here comes the Sun! VW
2013-08-19 21.49.06

Mamma told me there’d be days like this…

Well, a few days behind on posting, a lot has been going on.

Sunday:
Felt great! It was raining and cold outside, so decided to get my laundry done in preparation for moving up to the third floor. This is a chore since, it do it all my hand in my small bathroom sink and try hanging it all over the kitchen area to dry. I have a small heated towel bar, but the emphasizes is small. Took a nap, and then Kristy and I ventured out to the market in search of ice cream for me. What a treat, since I was on the Gluten Free, dairy free and egg free diet for over a year, Ice Cream and pizza I can’t get enough of. Luckily I’ve not gained any weight.

Monday:
Big day, I have my last steroid infusion, YEA! And I’m preparing to move up to the third floor. So, I’m packing up my room and then waiting for my new room to be sanitized for me. Then Dr. Fedorenko comes down and says it’s time for me to go have my line in my Jugular inserted, so I will be ready for removing the stem cells on Tuesday. So, I’m waiting out in the hall and hear Kristy not too happy having hers put in, this is a little un-nerving, especially when she comes out crying. OK, now my turn, GULP! I lay down and they turn my neck and begin the process, it is painful, but I live. It becomes more painful as the day progresses though and just trying to turn your head is impossible.

Octopus in my neck!

Octopus in my neck!

I go lay down in my old room and then they come to move me up to the isolation floor, 3rd floor. I get settled and eat a bit, and then Kristy and I done our best lunch lady nets and go find ice cream again. Well deserved I’d say.
Lunch ladies out on the hunt for Ice Cream

Lunch ladies out on the hunt for Ice Cream

We get back to our rooms and call it a night, knowing the last of our stimulation shots will come at 11:00 pm and 3:00 am, and luckily they gave me some pain meds then too, and I was able to sleep a few hours. Try sleeping with an octopus attached to you neck, just try it sometime, not too comfy.

Tuesday: (ok, still a time traveler so I can bring you up to your future, my real time again).
I woke up early to shower and be ready for them to arrive at 7:30 to start gathering the stem cells. Put on the big Girl Pull Ups, and have all my toys on my bed to amuse me for the 4-5 hours this will take. So, that’s where we are now.

The Magic Machine

The Magic Machine


Until tomorrow, or today, who knows, VW

Stronger…

Well, yesterday, Saturday, was a pretty quiet day. It was a bit cold and rainy all day, so I didn’t get to get out an do my walks, just did some stairs, and those aren’t what I do best at all, just trying not to fall is a more accurate description while, holding tightly to the handrail. Anyway, I did them.

My injections at 11:00 pm, and 3:00 am went well, the nurse didn’t scare me too much. I’d tried to warn her I have horrible nightmares, and not to startle me, so she was gentle. I’m a light sleeper anyway, so woke up without an issue or blood shed. The Solumedrol drip was at noon, it takes about 30 min, and you just lay there, so you’re seeing how my day is going, pretty slow. The big stuff will start happening on Monday when I move up stairs to the “clean floor”, where Kristy is. They said our rooms will be next to each other’s. I’m going to have her take photos of my head shave, with her supervising the Mohawk Haircut. So, thought I’d throw out some ideas I was mulling around. Let me know what you think?

Maybe too much gel.

Maybe too much gel?

Mr. T?? I don't think I brought enough bling to pull that off.

Mr. T?? I don’t think I brought enough bling to pull that off.

This guy obviously did not get the message across to the barber very well.

This guy obviously did not get the message across to the barber very well.

If only I looked as good as Demi Moore.

If only I looked as good as Demi Moore.

So, you’ll have to wait until next week to see what we come up with. I know you are sitting on the edge of your seat waiting. I had to give you some suspense, this can get pretty boring otherwise.

Enjoy your Sunday, where ever you are. I’m sure there will be some football being watched somewhere, even if it’s still pre-season. It’s football, you HAVE to watch it!! I can’t wait to get back for the Ole Miss season, I will have only missed three games.
VW

Empathy…

Good Morning, I’ve wrapped up Friday, and am well into Saturday, but I like doing one day at a time, so today you will read what happened yesterday. Confused yet? I am a time traveler, so just get used to it.

FRIDAY: August 23, 2013
They came in and took my temperature at 7:00, all normal, then Dr. Fedorenko comes in and checks my BP and pulse as all is good, and then he proceeds to layout out the game plan to get this party started. At 11:00 pm and 3:00 am I will have my first injection to stimulate the my bone marrow to start to over produce, this will be everyday until Monday, I believe. (Those aren’t the best times for my sleeping, but we’ll work with it) Then will take two pills, one to take 30 min before dinner and one to take 30 min before breakfast the following morning. These will help protect my gastrointestinal from all the stuff that’s about to go through me. I don’t know, but maybe they should have started those when they started serving tongue?? I’m just saying. At noon a nurse will come down and insert a peripheral cannula, that will stay in my arm for the daily steroid infusions, this way they don’t have to keep using me as a human pin cushion.
photoinfusion bottle
It doesn’t hurt, I just can’t get it wet in the shower. This is where those shower shields I brought will start to come in handy. Maybe should have ordered one more weeks supply of those, now that I have this to cover too, oh well, it will work out. So, then I laid there for 30 min while the steroid infusion dripped into me.
I’ve had people ask about the translation sheet for symptoms, we were given it yesterday, now that they are actually doing stuff to us that we might re-act to.
symptoms

Then done for the day, free time!!

So, Kristy and I decided to venture out of the gates, the first time since I’ve been here, so really excited., and I really would like an ice cream. YUMMY! I’ve really been craving Ice Cream lately, I don’t know, not eating any for over year might do that to you, so now I want it any chance I can have it. We have a nice walk to the market, which is just a couple of blocks away. Great to get out, we know in a week, we will be stuck on the third floor for pretty much the rest of the time so get out now.
Kristy ice cream outingVicki Ice Cream

Another lovely dinner arrived, and I choked it down and then went on another walk around the grounds with Kristy. It is nice to have someone that speaks English around, even though it’s Aussie English. (I can totally say that, she totally picks on my Southern accent). Anyway we had some photos taken by the chapel and then headed back to our rooms. I had some laundry to do and was trying to stay up until 11:00 waiting for my first injection, it’s not too bad and I try to go to sleep, knowing that I’ll be woken up in 4 short hours. My legs spasticity is going in overdrive and I’m totally uncomfortable. I wasn’t planning on taking a sleeping pill tonight, but I had planned on getting some sleep, so I take it, and remind myself to talk to Dr. Fedorenko tomorrow to see if I can take my Magnesium pills I brought for the spasticity. I hate taking sleeping pills if I don’t have to.

Well that wraps up another very exciting day here. It’s surprising how fast time is going, I know I’ll be home before I know it and just in time for the Ole Miss v Alabama Game, Hotty Toddy!!
VW

Previous Older Entries