Kickin' MS with HSCT

Well, a few days behind on posting, a lot has been going on.

Sunday:
Felt great! It was raining and cold outside, so decided to get my laundry done in preparation for moving up to the third floor. This is a chore since, it do it all my hand in my small bathroom sink and try hanging it all over the kitchen area to dry. I have a small heated towel bar, but the emphasizes is small. Took a nap, and then Kristy and I ventured out to the market in search of ice cream for me. What a treat, since I was on the Gluten Free, dairy free and egg free diet for over a year, Ice Cream and pizza I can’t get enough of. Luckily I’ve not gained any weight.

Monday:
Big day, I have my last steroid infusion, YEA! And I’m preparing to move up to the third floor. So, I’m packing up my room and then waiting for my new room to be sanitized for me. Then Dr. Fedorenko comes down and says it’s time for me to go have my line in my Jugular inserted, so I will be ready for removing the stem cells on Tuesday. So, I’m waiting out in the hall and hear Kristy not too happy having hers put in, this is a little un-nerving, especially when she comes out crying. OK, now my turn, GULP! I lay down and they turn my neck and begin the process, it is painful, but I live. It becomes more painful as the day progresses though and just trying to turn your head is impossible.

I go lay down in my old room and then they come to move me up to the isolation floor, 3rd floor. I get settled and eat a bit, and then Kristy and I done our best lunch lady nets and go find ice cream again. Well deserved I’d say. We get back to our rooms and call it a night, knowing the last of our stimulation shots will come at 11:00 pm and 3:00 am, and luckily they gave me some pain meds then too, and I was able to sleep a few hours. Try sleeping with an octopus attached to you neck, just try it sometime, not too comfy.

Tuesday: (ok, still a time traveler so I can bring you up to your future, my real time again).
I woke up early to shower and be ready for them to arrive at 7:30 to start gathering the stem cells. Put on the big Girl Pull Ups, and have all my toys on my bed to amuse me for the 4-5 hours this will take. So, that’s where we are now.

Until tomorrow, or today, who knows, VW