When I started this journey I was told, there is no treatment or cure for Primary Progressive Multiple Sclerosis. I didn’t take that as the final answer and I kept searching until I found something that would help me, HSCT. The other obstacle I see people considering HSCT is financial. I often see post where people give up when they see the cost of this treatment and that insurance won’t cover it. How can you get this close and not go the distance. You have to jump out there with a leap of faith that you will be able to raise the funds needed to get the treatment. $40,000 just for the treatment in Russia, this doesn’t include travel, hotels, visa, after care required and the list goes on, it’s expensive. But some how, some way you can do it.
So, don’t give up, there are answers out there, you just have to search for them. Whether it’s an illness or other obstacle in your life, don’t give up.
You’re getting Jason Mraz again today, I love his music. And since this is my blog I get to pick the songs. 🙂
VW
Kickin' MS with HSCT 
Jul 30, 2013 @ 12:12:53
Vick, you are one of the strongest individuals I know-both mentally and physically (yes you still are strong, your body has tricked you into thinking that you are not). I have a song that made me think of you yesterday while I was driving. So, if I may suggest a song, it is Tom Petty’s “I Won’t Back Down”.
Here are the lyrics:
Well I won’t back down, no I won’t back down
You could stand me up at the gates of hell
But I won’t back down
Gonna stand my ground, won’t be turned around
And I’ll keep this world from draggin’ me down
Gonna stand my ground and I won’t back down
Chorus
Hey baby, there ain’t no easy way out
Hey I will stand my ground
And I won’t back down
Well I know what’s right, I got just one life
In a world that keeps on pushin’ me around
But I’ll stand my ground and I won’t back down
Hey baby there ain’t no easy way out
Hey I will stand my ground
And I won’t back down.
May 26, 2015 @ 18:35:43
Hello, I’ve been doing a lot of looking, but so far haven’t found my answer and I’m hoping you can assist me. My son, Joey, age 50, was diagnosed about 6 yrs ago. We are VERY interested in HSCT but haven’t been able to found out the cost and where to go for the treatment. Could you point me in the right direction to find out this info, especially the COST of the treatment. I found that Mexico, Israel and Russia are some of the countries that give the treatment and France too. I would do fundraisers to get my son where he needs to go. But as you know, time is of the essence. CAN YOU HELP ME? PLEASE!