7 Months Post HSCT

Well, another month has past and improvements are still happening. With that being said, I’d like to emphasize the importance of physical exercise in the recovery process. I would not be seeing the improvements without putting the time in at the gym, or walking. I do something physical every day. At the beginning that might have been just walking to the mail box, with help from my husband to get down the two front steps. Then walking a little more, adding more very, very slowly. The key is to add more very, very slowly, if you over do it you will pay the price. I’ve pushed too hard and it took me 2-3 days to recover, no fun. As you get stronger it’s so easy to overdo it. You start feeling normal and you run one too many errands, or walk just a little too far. Everyone going through recovery will have a story. I remember the first time I went to the store, too soon by the way, I went with my mother and we walked in the house and walked straight to bed. She had to put away the groceries and I think I was asleep as soon as my head hit the pillow.

I started Physical Therapy 1 month after returning home, I had the GP prescribe that. After 8 weeks of PT, I started going to my local gym. I have to be super careful with germs, so I clean everything off before I touch it and then when I’m done. Then wash my hands a couple of times during the workout. I had been working out for most of my adult life, so I didn’t get a personal trainer, but if you haven’t I strongly suggest using one to get you started. Explain what you’ve been through, so they take it slow, you’re not the normal person just trying to get into shape.

So here is where I am as of today. On Saturday I rode my bike for the first time since HSCT, only 2 miles, but rode. The Sunday before I left for Moscow I rode 6.5 miles, so I have a ways to go to get there again. I held off riding for so long because of how weak I was after being in the hospital and balance issues. My balance has greatly improved, so I thought I’d give it a go.
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Back in the fall I set a goal to walk round trip across the Big Damn Bridge by the end of April. It spans across the Arkansas River and it’s the longest non-vehicle bridge in the US. It has a very long grade to get to the top, with beautiful views all along the way. Round trip is 1.83 miles. Sunday, I decided it was time and the day was beautiful. I’m proud to say I made it!!! So, thanks to HSCT and a lot of hard work I’m reaching these goals and setting new ones.

If you are reading my blog for the first time, you may want to know I’m PPMS, so I never dreamed I’d actually have any improvements.
Remember no one wants to get well as much as you do! Keep fighting.
VW
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11 Comments (+add yours?)

  1. Ximena
    Apr 21, 2014 @ 10:50:46

    Well done Vicki !! I’m so happy for any little goal you accomplish. You’re an example to me, a glimpse of hope. Take it easy and keep it coming !! 🙂

    Reply

  2. Sue
    Apr 21, 2014 @ 11:01:42

    I cannot tell you how much happiness reading your updates gives me. I have tears in my eyes (happy ones) and so thankful you were brave enough to try this. You have helped pave the way for so many people – perhaps one day it will be standard treatment and hearing the MS diagnosis will no longer be a life sentence of debilitation. Rock on, sistah. Praying for your continued success and improvement!!

    Reply

  3. Claibanne
    Apr 21, 2014 @ 14:51:33

    Well look at you! I’m so happy for your progress!
    They say you never forget how to Ride a bike, but put some balance issues in there and I’ll beg to differ!
    I bet when you stood at the bottom of the BDB you were thinking, “wow. That’s not ADA!” And look what you did! Yea!

    Reply

  4. Nancy Rashidi
    Apr 21, 2014 @ 16:33:22

    Best. Update. Ever.
    So happy you’re doing so well!!!
    You inspire all of us to keep on going !

    Reply

  5. Roger
    Apr 21, 2014 @ 17:14:13

    Fantastic! Congratulations! Happy Easter! What a way to celebrate!
    All the best, prayer, and love from Amarillo!
    Roger & Diane

    Reply

  6. ken
    May 17, 2014 @ 16:56:40

    anyone here been treated forppms with success ?

    Reply

    • kickinms
      May 18, 2014 @ 10:20:54

      Yes, including me. 🙂 I personally know of at least 6 in the last year, Dr. Fedorenko in Russia and Dr. Slavin in Israel, have been doing HSCT for many years and have treated many PPMS patients with success. It works best if PPMS has been recently diagnosed and the disability level it not too high, but each person is treated based on their personal condition.

      Reply

  7. Laurel Peterson
    Aug 29, 2014 @ 00:37:41

    How are you now?

    Reply

    • kickinms
      Aug 29, 2014 @ 09:08:56

      I’m doing great!! My 1 year transplant birthday is Sept. 4, and I’ll be posting my update then. I know I’ve not posted in several months, you just get busy living life again and forget. I set a goal to walk 2 miles by August, I did that in late June and have done it every Sunday since then. It does wipe me out, but I recover in a day. My normal walk is 1.5 miles, considering I could barely walk .25 miles at this time last year, pretty amazing. 🙂 So check back next week on Sept. 4th, I’ll have photos and more on my recovery. Thanks for following my story.

      Reply

  8. David
    Nov 10, 2014 @ 10:32:57

    this blog is making me cry. i am getting hsct january in chicago i am so happy for you. I’m 24 my ms took so much away from me and reading you blog is telling me that it will get better. i hope everything continues to get better

    Reply

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