6 month post HSCT

Well another month has flown by and I’ve now had my 6 month follow up Neurologist appointment and MRIs, so thought I’d update you.

First, I met with the Neuro at UAMS a couple of weeks ago, this was the first time to see him since I moved to this area just before leaving for Russia. With that being said, he doesn’t really know what my condition was before other than notes form my former Neuro and my before and after videos. Well…I first met with the intern, and he did all the strength test and walking test, and made the comment that my strength was that of someone without MS. 🙂 I still have hyper active reflexes, very obvious, since I almost kicked him in the face. Then he went and spoke to the head Neuro and he came to check me out. He was very interested in my story and wanted information on Dr. Fedorenko and Dr. Burt, which I gladly provided. I then showed him my walking videos and he was amazed. He said to come back in 6 months so we can celebrate more of my improvements. I told him I hope to be walking 2 miles by that time, and he said, he had no doubts that I would. So, that went very well.

Second, I had my MRIs on Friday, so for 2.5 hours in the tube with my head locked down I thought I would die. I’m claustrophobic, so this really is not fun, at all. I had to have him get me out of there twice. Anyway, I did finish and don’t want to do that for a very long time. It appears that nothing has changed since Russia, I still have the 3 very small non-enhancing lesions on my spinal cord, and that’s it. So, nothing new, is good news to me.

Lastly, we’ve been getting the word out about HSCT. I was interviewed on Good Morning Arkansas yesterday morning for MS Awareness Month. Brooke and Diana were interviewed up in PA yesterday, and the segment Kristy Cruise did for 60 Minutes Australia aired a few weeks ago. They were filming that while she was in Russia with me. If you want more, email the stations and lets shake things up.

Here is my Good Morning Arkansas interview, aired March 31, 2014.

Here is the interview of Brooke Slick and Diana Rees on We Are Central PA.com

This is Kristy Cruise on 60 Minutes Australia

Remember no one wants you to be better as much as you do!!