3 Years post HSCT for PPMS

Three years have flown by! It’s almost surreal that I was in Russia this time three years ago undergoing HSCT for PPMS.  My EDSS* was 6 then, today I’d say I’m a 4 on a good day.   EDSS doesn’t take into consideration my other issues, only your physical disabilities, my main disabilities are cognitive, etc…  I still have lots of damage and issues, but physically I’m stronger due to a lot of time in the gym, walking and biking.  I’m not complaining, I was a 6 and progressing at 1 point a year that would make me a 9 now… 10 is “Death due to MS”. Obviously I’m happy with the results, and have put in the time to see what I could get back.  You can read my 1 year and 2 year post to see my symptom improvements, nothing there has changed since the first 12 months.  Other than that I really don’t have much to report. I’m often asked what my walking looks like, so I put together a video reviewing the past 3 years, and included some clips of before, during, and after. (see below)

Click below to watch the video of the past three years of progress. The music is “Rise”, by Katy Perry.

*EDSS: http://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/10-2-3-29-EDSS_Form.pdf